The National ALS Registry: A recruitment tool for research
نویسندگان
چکیده
منابع مشابه
The National Amyotrophic Lateral Sclerosis (ALS) Registry.
A myotrophic lateral sclerosis (ALS) is a progressive and often fatal neuromuscular disease. Most people die within 2–5 years of being diagnosed with ALS (Mitsumoto, Chad, & Pioro, 1998). Community concerns about perceived clusters of cases of ALS have challenged public health agencies to consider the possible contribution of environmental contaminants to the development of this disease. The ge...
متن کاملEvaluating the completeness of the national ALS registry, United States
Our objective was to evaluate the completeness of the United States National ALS Registry (Registry). We compared persons with ALS who were passively identified by the Registry with those actively identified in the State and Metropolitan Area ALS Surveillance project. Cases in the two projects were matched using a combination of identifiers, including, partial social security number, name, date...
متن کاملIranian Joint Registry(Iranian National Hip and Knee Arthroplasty Registry)
Periodic evaluation and monitoring the health and economic outcome of joint replacement surgery is a common and popular process under the territory of joint registries in many countries. In this article we introduce the methodology used for the foundation of the National Iranian Joint Registry (IJR) with a joint collaboration of the Social Security Organization (SSO) and academic research de...
متن کاملNational Joint Registry of Iran
Joint replacement is currently on the rise with a high community burden. A registry was designed to evaluate the costs,possible complications, and rate of revisions as well as finding the most effective techniques, risk factors associatedwith poor results, indications for revision surgeries, and also demographic evaluation of patients undergoing jointreplacement surgery in Iran. Level of eviden...
متن کاملCohort Profile: The National Academy of Sciences-National Research Council Twin Registry (NAS-NRC Twin Registry).
The National Academy of Sciences-National Research Council Twin Registry (NAS-NRC Twin Registry) is a comprehensive registry of White male twin pairs born in the USA between 1917 and 1927, both of the twins having served in the military. The purpose was medical research and ultimately improved clinical care. The cohort was assembled in the early 1960s with identification of approximately 16,000...
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ژورنال
عنوان ژورنال: Muscle & Nerve
سال: 2014
ISSN: 0148-639X
DOI: 10.1002/mus.24421